Remicade hair loss?

Does anyone notice hair loss with Remicade? Along with all the possible side effects this one gives me stress! I know it’s minor compared to other things that can happen, but it’s like the last straw for me. I like looking my best and not looking sick. Anyone else have this happen?

reminders to friends of chronically ill people:

notanotherrsdblog:

pissbloc:

  • if we actually say it hurts, that means it REALLY HURTS
  • if we dont say it hurts, it probably still hurts
  • if we spoke up every time we were uncomfortable/in pain we would be yelling constantly
  • never ask if we’re “still sick”
  • never act surprised that we’re “still sick”
  • we’re probably gonna be still sick forever so please just be supportive and remember that we’re in pain all the fucking time and thats why we’re slow and forget stuff and flake out on you

Truth.

(Source: pissabled)

"Blessed"

Synonyms:

  • favored 
  • fortunate
  • lucky
  • privileged
  • enviable
  • happy

I hear celebrities, people who are esthetically beautiful and healthy say this all the time… "I’m so blessed." - My first reaction to that statement is.. well, aren’t we all blessed? 

But, I look at those synonyms and I think— what about the homeless, the poor, people who are impaired, people who are fighting Cancer, or people (like myself) with chronic illnesses? Yes, we are alive. Yes, life itself is something to be thankful for, and definitely beats the alternative. But, still, for so many of us… every single day is a struggle. 

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(Source: thisisjeanniemarie)

Merry Christmas! Have a happy healthy new year! 

Merry Christmas! Have a happy healthy new year! 

sickgirldiary:

Dear Santa, Please give all of my friends the gift of healing and comfort this holiday season. They are all such beautiful and strong fighters, and deserve the greatest gift of all… A cure for their pain and conditions.

I second that!!!!

sickgirldiary:

Dear Santa,
Please give all of my friends the gift of healing and comfort this holiday season. They are all such beautiful and strong fighters, and deserve the greatest gift of all… A cure for their pain and conditions.

I second that!!!!

If you have your HEALTH you are wealthy beyond measure.

I would rather have my health than have a million dollars…I really would.

peace-s3renity:

We are warriors. Love all my spoonies. Soft hugs to all. #wearewarriors #notlazy #notreallyok #fighters #chronicillnesses #chronicpain #fibromyalgia #spoonies #hugs

peace-s3renity:

We are warriors. Love all my spoonies. Soft hugs to all. #wearewarriors #notlazy #notreallyok #fighters #chronicillnesses #chronicpain #fibromyalgia #spoonies #hugs

(via lifewithautoimmune)

…’ Health brings a freedom very few realize, until they no longer have it…'

 - See more at: http://www.karenstan.net/2013/11/11/nurse-reveals-top-5-regrets-people-make-deathbed/#sthash.EJlMmq1K.dpuf

agirlwithguts:

"You don’t look sick"

Why does someone have to look sick to be sick? This is Alex. She is only 20 years old and is currently in hospice living the last days of her life BECAUSE OF CROHN’S DISEASE.

image

Before I go any further I just want to take a moment to share with you her fundraising page…

itsbrittanybutler:




ONE DAY LEFT TO WATCH/SHARE!!! Literally, all you have to is watch the video on my channel (the link below) for 30 seconds! And, you can watch or share as many times as you’d like! :) Anything helps!
http://songwriter.revimage.com/channels/brittanybutler





PLEASE Help my daughter to get points by viewing for 30 secs, and sharing!! Thanks!!

itsbrittanybutler:

ONE DAY LEFT TO WATCH/SHARE!!! Literally, all you have to is watch the video on my channel (the link below) for 30 seconds! And, you can watch or share as many times as you’d like! :) Anything helps!

http://songwriter.revimage.com/channels/brittanybutler

PLEASE Help my daughter to get points by viewing for 30 secs, and sharing!! Thanks!!

This is perfect!!

This is perfect!!

(Source: finding-beautyinnegative-spaces, via lifewithautoimmune)

Medication cost SO much! What??

My medication cost for last month was $5,257.49.  I paid $283.49 out of pocket, and that’s a lot for me to afford. Oh my God, what would I ever do without Medicare/Medicaid? I am so grateful to have these plans to cover me. No way could I afford that, even if I were able to work as an RN!

Being disabled isn’t just being sick a lot, it’s also being dependent on all sorts of very expensive medications just to keep going day to day!!! It’s really a crime that medication has to cost SO much! 

I am so sick and weak from a Crohn’s flare and I have to get my daughter to a very important event tomorrow. I just don’t know what to do. I really hate my body when it betrays me like this. I know part of having a chronic illness is living with unpredictable health, and ups and downs. But it really gets to me sometimes. :(

katarinajoe said: Hi Jeannie, how is it being an RN and having Crohn's Disease? I'm currently in college hoping to become a nurse but sometimes I'm afraid I'll never be able to do it because of my Ulcerative Colitis. I'd love to hear some words of wisdom!

Honestly, it was difficult for me. It took me longer due to many flares and hospitalizations, BUT I did do it!!! I was very proud of myself! It can be done, I was honest with the president of the school about my health issues, and he was understanding. I asked for extra time for some assignments, things like that. BUT it’s SO worth doing! You will love it! Just be open to your professors, and ask for help when you need it. You can do it! I’ll be rooting for you!!!!

"People are often unreasonable and self-centered. Forgive them anyway.
If you are kind, people may accuse you of ulterior motives. Be kind anyway.
If you are honest, people may cheat you. Be honest anyway.
If you find happiness, people may be jealous. Be happy anyway.
The good you do today may be forgotten tomorrow. Do good anyway.
Give the world the best you have and it may never be enough. Give your best anyway.
For you see, in the end, it is between you and God. It was never between you and them anyway."

— Mother Teresa

(Source: )