Does anyone notice hair loss with Remicade? Along with all the possible side effects this one gives me stress! I know it’s minor compared to other things that can happen, but it’s like the last straw for me. I like looking my best and not looking sick. Anyone else have this happen?
- if we actually say it hurts, that means it REALLY HURTS
- if we dont say it hurts, it probably still hurts
- if we spoke up every time we were uncomfortable/in pain we would be yelling constantly
- never ask if we’re “still sick”
- never act surprised that we’re “still sick”
- we’re probably gonna be still sick forever so please just be supportive and remember that we’re in pain all the fucking time and thats why we’re slow and forget stuff and flake out on you
I hear celebrities, people who are esthetically beautiful and healthy say this all the time… "I’m so blessed." - My first reaction to that statement is.. well, aren’t we all blessed?
But, I look at those synonyms and I think— what about the homeless, the poor, people who are impaired, people who are fighting Cancer, or people (like myself) with chronic illnesses? Yes, we are alive. Yes, life itself is something to be thankful for, and definitely beats the alternative. But, still, for so many of us… every single day is a struggle.
If you have your HEALTH you are wealthy beyond measure.
I would rather have my health than have a million dollars…I really would.
…’ Health brings a freedom very few realize, until they no longer have it…'
My medication cost for last month was $5,257.49. I paid $283.49 out of pocket, and that’s a lot for me to afford. Oh my God, what would I ever do without Medicare/Medicaid? I am so grateful to have these plans to cover me. No way could I afford that, even if I were able to work as an RN!
Being disabled isn’t just being sick a lot, it’s also being dependent on all sorts of very expensive medications just to keep going day to day!!! It’s really a crime that medication has to cost SO much!
I am so sick and weak from a Crohn’s flare and I have to get my daughter to a very important event tomorrow. I just don’t know what to do. I really hate my body when it betrays me like this. I know part of having a chronic illness is living with unpredictable health, and ups and downs. But it really gets to me sometimes. :(
katarinajoe asked: Hi Jeannie, how is it being an RN and having Crohn's Disease? I'm currently in college hoping to become a nurse but sometimes I'm afraid I'll never be able to do it because of my Ulcerative Colitis. I'd love to hear some words of wisdom!
Honestly, it was difficult for me. It took me longer due to many flares and hospitalizations, BUT I did do it!!! I was very proud of myself! It can be done, I was honest with the president of the school about my health issues, and he was understanding. I asked for extra time for some assignments, things like that. BUT it’s SO worth doing! You will love it! Just be open to your professors, and ask for help when you need it. You can do it! I’ll be rooting for you!!!!
If you are kind, people may accuse you of ulterior motives. Be kind anyway.
If you are honest, people may cheat you. Be honest anyway.
If you find happiness, people may be jealous. Be happy anyway.
The good you do today may be forgotten tomorrow. Do good anyway.
Give the world the best you have and it may never be enough. Give your best anyway.
For you see, in the end, it is between you and God. It was never between you and them anyway."
— Mother Teresa